Jack Christmas, a little boy who has been diagnosed with Mowatt Wilson Syndrome, a rare genetic condition which has resulted in him having severe learning disabilities, and some associated physical difficulties, has received an early Christmas gift.
The 5-year-old with the perfect Yuletide name, from Hull, will benefit hugely from a range of specially selected sensory products designed to aid in his development and interaction with others.
Thanks to Caudwell Children, the national charity that provides practical and emotional support to disabled children and their families, the Mixed Light Sensory and Projector Pack has been delivered just in time for Christmas.
Staff at the charity’s HQ, in Stoke-on-Trent, were so taken by Jack’s seasonal surname, when they received his application for funding, that they were determined that he should enjoy his sensory support over the festive season.
Dawn Christmas, Jack’s mum, is delighted by the donation and believes that it will have a significant impact on her son’s quality of life. She said: “Jack is unable to walk and communicate verbally and he’s fully dependant on the people around him. He particularly enjoys lights, images and bubble walls, so this equipment will be really important in his development. And to get it in time for Christmas is fantastic.
“The pack includes a bubble tube, acrylic mirrors, bubble fish tub, a pump, an LED lightsource, fibre optic sideglow and large button switches which will be extremely useful in reinforcing Jack’s understanding of cause and effect, enabling him to make choices.”
The equipment is also suitably robust as Jack does not understand the impact of handling objects with force.
Dawn, a 40-year-old Nursery Nurse, is currently in the process of adapting their home to accommodate a downstairs bedroom, changing room and play area, to meet Jack’s needs. When the building work is complete the projector will allow jungle animals, deep sea fish and a fireworks display to be projected onto the walls, making it the perfect environment for her to interact with Jack.
Trudi Beswick, CEO of Caudwell Children, said: “We’re delighted to be able to provide the sensory pack for Jack, and the equipment will help him reach his potential. With a surname like his we really wanted to get it to him before Christmas Day, so we desperately wanted the application process to run as smoothly as possible. The fact that we have managed to get it to him, before the big day, is fantastic news and will ensure a great Christmas in the Christmas household!”
Caudwell Children is urgently appealing for donations to allow them to provide Mixed Light Sensory Pack’s for more young children in 2014. For further information and to donate visit our Donation page.